After learning how to live with vision loss due to Leber’s Hereditary Optic Neuropathy (LHON) disorder, John J. Woodrow wants to begin an LHON organization. Woodrow, who lives in Newfoundland, Canada, begin experiencing is first symptoms of this inherited form of vision loss in 1996.
This rare eye disorder usually unfolds slowly with a progressive loss of vision in both eyes. Woodrow repeats what we say here at Vision Loss Resources: although there is an adjustment period, there’s no reason to surrender your independence and favorite activities after vision loss.
Woodrow’s goal is to start an LHON organization that includes a research foundation and a support group. He is adamant that support groups are a great help to people experiencing vision loss. Read his story here. If you are interested in helping him with his LHON organization or joining his support group for people affected by this disorder, his contact information is at the end of the article.